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Websites

  • Sexuality Education for Students with Disabilities:This website provides a comprehensive overview of sexuality in the context of disability, featuring resources compiled by the Center for Parent Information and Resources. Resources include information on defining sexuality and how it develops, social skills, teaching children about sexuality, effects of disability on sexuality, and relationship issues for young adults. Resources written with specific disabilities in mind.

Books

  • LGBT issues for people with developmental disabilities: This textbook describes LGBT issues in a context relevant to people with developmental disabilities
  • Myths about Sexuality and Developmental Disabilities: This book first challenges the beliefs and attitudes of family members, educators, and DD professionals concerning the sexuality of people with developmental disabilities. It then guides them in meeting the social-sexual needs of the people they love and serve. Overflowing with passion and filled with wisdom, this book provides a philosophical, yet practical, definition of sexuality
  • Human Sexuality Handbook: A guide to policy for individuals with intellectual disabilities and their residential service providers
  • Sexuality and Disabilities: This collection of eight articles is intended to provide a better understanding of issues related to sexuality, intimacy, and disability. Titles include “Mental Retardation and Sexual Expression: An Historical Perspective,” “Responding To The Sexual Concerns of Persons with Disabilities,” “A Holistic Social Work Approach to Providing Sexuality Education and Counseling for Persons with Severe Disabilities,” and “Sexual Assault and People with Disabilities.”
  • Barbara and Fred: Grownups Now: Living fully with a disability is the theme of this mother’s book about her daughter growing up. It is the sequel to As Up We Grew With Barbara.
  • Understanding and Expressing Sexuality: This book tackles dating, relationships, and sexuality issues for individuals with Asperger’s Syndrome and autism. The book emphasizes the importance of self-confidence and practice.
  • Asperger’s and Sexuality: This book tackles dating, relationships, and sexuality issues for individuals with Asperger’s Syndrome and autism. The book emphasizes the importance of self-confidence and practice.
  • Introduction to Sexuality Education for Individuals Who Are Deaf-Blind and Significantly Developmentally Delayed: The ten chapters in this book address the sexuality issues in the lives of school age individuals who are deaf-blind or significantly developmentally delayed. It notes that these individuals usually do not experience sexuality through typical relationships and thus require a different type of instruction.
  • Sexuality and Children with Intellectual Disabilities: This book is designed for parents, helping them to make sure their child develops healthy sexuality, that sense of self and confidence that helps make us all well-adjusted and strong individuals. It focuses on interacting with your children – no matter their age or ability – in a way that increases self-esteem, encourages appropriate behavior, empowers them to recognize and respond to abuse, and enables them to develop life long relationships. Both parents of people with intellectual disabilities and people with intellectual disabilities themselves are referenced
  • Couples with Intellectual Disabilities: This book provides information to parents and caregivers on interacting with their children (regardless of age or ability), in a way that increases their self esteem, encourages appropriate behavior, empowers them to recognize and respond to abuse, and enables them to develop lifelong relationships. Throughout the book, parents share the joys and challenges of raising a child with an intellectual disability as they offer advice and practical strategies, while individuals with disabilities share information about what is important to them
  • Sexuality for People with Intellectual Disabilities: This book gives social workers, teachers, and direct support professionals comprehensive instruction on how to educate people with disabilities about sexuality
  • Puberty (for boys): A clearly illustrated, simply worded explanation of the changes of puberty for girls and boys. Includes a Parents’ Guide.
  • Puberty (for girls): A clearly illustrated, simply worded explanation of the changes of puberty for girls and boys. Includes a Parents’ Guide.

Articles

Curricula

  • Teaching Human Sexuality: A guide for parents and other caregivers on teaching human sexuality to individuals with intellectual and developmental disabilities.
  • Comprehensive Guide Sexuality for People with Developmental Disabilities: These two curricula are for people with mild to moderate developmental disabilities. Life Horizons I consists of five programs: “Parts of the Body,” “Sexual Life Cycle,” “Human Reproduction,” “Birth Control or Regulation of Fertility,” and “Sexually Transmitted Diseases & AIDS.” It includes over 500 slides, a teacher’s guide and script, and video. Life Horizons II consists of seven programs: “Building Self-Esteem & Establishing Relationships,” “Moral, Legal & Social Aspects of Sexual Behavior—Male,” “Dating Skills & Learning to Love,” “Marriage & Other Adult Lifestyles,” “Parenting,” “Preventing or Coping With Sexual Abuse.” It includes over 600 slides, and a teacher’s guide and script.
  • Sexuality Education for Parents: A guide for parents to teach their child about sexuality and relationships. Includes strategies for how to talk with the child as well as a discussion guide for small groups of parents.
  • Sexuality Education: This curriculum for professionals consists of information, activities, and overheads that provide strategies toward making sexuality education more accessible to people with developmental disabilities.
  • Sexuality Education for People who are Deaf-Blind: The ten chapters in this book address the sexuality issues in the lives of school age individuals who are deaf-blind or significantly developmentally delayed. It notes that these individuals usually do not experience sexuality through typical relationships and thus require a different type of instruction.
  • Anatomically Correct Educational Doll: Teach-A-Bodies anatomically correct dolls serve as an invaluable tool for the sexual educators of developmentally disabled individuals. In an appropriate and non-threatening manner, the function and purpose of the human body is represented and communicated. The male and female dolls, with their correct proportions and professional design, transfer lifelong important information in a visual three-dimensional manner. When used professionally, these dolls create a safe environment for the developmentally disabled to ask questions and express their thoughts. A basic knowledge of human sexuality can be communicated clearly.
  • Friendship, Dating, and Sexuality: This is an innovative DVD series on relationships for people with intellectual and/or developmental disabilities. The three parts are “The Friendship Series,” “The Boyfriend/Girlfriend Series,” and “The Sexuality Series.”

Websites

Books

  • Easy for you to say: Q & As for teens living with chronic illness or disability: Provides straightforward answers to questions that teens have relating to chronic illness or disability. Chapters include “Sexuality,” “Family Relationships,” “Doctors and Medical Issues,” “Friends and Dating,” “School and Work,” “Alcohol, Drugs, and Medication,” “Recreation,” and “Transitions.”
  • Restricted access: Lesbians on disability: Represents the voices of lesbians experiencing a diverse range of disabilities. Essays include “Autoimmune Disease: A Personal Perspective,” “Complications: The Deaf Community, Disability and Being a Lesbian Mom—A Conversation with Myself,” “Flirting with You: Some Notes on Isolation and Connection,” and “Hidden Disability: A Coming Out Story.”
  • The sensuous heart: Guidelines for sex after heart attack or heart surgery: This cartoon-style booklet discusses the emotional and physical needs of people who have had a heart attack or heart surgery. It answers questions about sexual intercourse and discusses the effects of alcohol, prescribed drugs, stimulants, and illegal drugs.
  • Sexuality, Learning Difficulties, and Doing What’s Right: Explores the rights that individuals have to be informed about sexuality issues, to form relationships, and to express themselves sexually. Chapters include “Ethics, Learning Disabilities and Sexuality,” “Sweet Little Mystery: The Person With Learning Difficulties As A Sexual Being,” “Exploitation, Abuse and Assault: The Sexual Misuse of People With Learning Disabilities,” and “Being and Becoming: Sex Education, Responsibility, and the Limits of Inclusion.”
  • Regain That Feeling: Secrets to Sexual Self-Discovery: People Living With Spinal Cord Injuries Share Profound Insights Into Sex, Pleasure, Relationships, Orgasm, and the Importance of Connectedness: This book is part personal narrative, part educational guide, exploring the experiences, challenges, myths and understandings of sex after spinal cord injury.
  • Sex and Back Pain: A brief, thirty-two page pamphlet that serves as a guide to restoring sexual abilities lost to back pain. The pamphlet provides information and illustrations in a tasteful and non-threatening manner that should be accessible for most readers. Additionally, the pamphlet discusses communication, shyness, sensuality, pain avoidance strategy, and techniques divided between male and female.
  • The ultimate guide to sex and disability: For all of us who live with disabilities, chronic pain, and illness: The Ultimate Guide to Sex and Disability is a complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. The authors cover all aspects of sex and disability, including building a positive sexual self-image; positions to minimize stress and maximize pleasure; dealing with fatigue or pain during sex; finding partners and talking with partners about sex and disability; adapting sex toys; and more.
  • With this body: Caring and disability in marriage: Examines the views both of younger people who become disabled after marriage and of their partners who care and support them.
  • Intimacy and Sexuality in MS: This booklet is for people with MS and their partners. It addresses the importance of communication between partners. It also discusses sexual problems associated with MS for both men and women. A list of resources is provided.
  • Mother to be: A guide to pregnancy and birth for women with disabilities: A guide to pregnancy and birth for women with physical disabilities.
  • The illustrated guide to better sex for people with chronic pain: This self-help booklet provides information about frequent problems that interfere with sexual enjoyment for individuals who suffer from chronic pain and suggests simple, basic solutions. It includes six illustrations showing comfortable sexual positions for persons with various pain disorders, and stresses the importance of communication between partners.
  • Sexuality issues for youth with disabilities and chronic health conditions: This policy brief of The Institute for Child Health Policy addresses teen pregnancy prevention and risk factors for teen pregnancy as they relate to youth with disabilities. It also discusses strategies to address the needs of youth with disabilities in such programs as sexuality education, community family planning services, community partnerships, and contraceptive needs.
  • The sexual politics of disability: Untold desires: This book, based on first-hand accounts, takes a close look at questions of identity, relationships, sex, love, parenting and abuse and demolishes the taboo around disability and sex. It shows both the barriers to disabled people’s sexual rights and sexual expression, and also the ways in which these obstacles are being challenged.

Articles

  • How young people with disabilities conceptualize the body, sex and marriage in urban India: Four case studies: Using qualitative data, this paper discusses notions of sexual identity among urban Indian youth through four case studies of college students in Delhi. Gender emerges as a key analytical category in perceptions of sexuality among young men and women with visual and loco-motor disabilities. The author’s analysis carries added value, since she herself has low vision; thus conferring a reflexive angle to the research.
  • Sex therapy surrogate partners for individuals with very limited functional ability following traumatic brain injury: The use of surrogate sex therapists for survivors after Traumatic Brain Injury (TBI) who have Very Limited Functional Ability (VLFA) is discussed. It includes the rationale of using surrogate therapy with this population as well as some of the professional and ethical issues that such therapy can evoke. It is suggested that surrogate therapy can provide satisfaction and positive experiences to the restricted lives of some of the VLFA-TBI survivors. The use of surrogate therapy is viewed as a part of the integral rehabilitation process aimed at improving the quality of life and the fulfillment of basic human intimacy needs.
  • Sexuality training, education, and therapy in the healthcare environment: Taboo, avoidance, discomfort, or ignorance?: Multiple sources of resistance are present in the healthcare environment to comprehensive assessment and intervention efforts in regard to sexuality. The authors survey both the diversity of needs and values presented by consumers, and encourage providers to equip themselves educationally, emotionally, and ethically so that they can deliver relevant, holistic services to consumers.
  • The politics of sexual citizenship: Commercial sex and disability: Presenting empirical findings from two studies, one with sex workers who work from indoor sex markets and the other with men who buy sex, this paper exposes the existing relationships and practices between men with physical and sensory impairments who seek out commercial sexual services from female sex workers. In the discussion the politics surrounding sexual rights and commercial sex will be addressed.
  • Disabled sexuality: Toward rights and recognition: Looking back at the development of disability sexuality studies, there is a need for a social model of disabled sexuality. However, this should be sensitive to difference, including the impact of impairment. Disability sexuality studies necessarily challenge notions of sexual normality. There is a danger in overstating the importance of sex, as opposed to friendship and intimacy. Honneth’s work on relations of recognition may offer a way to conceptualize sexuality issues within the disability rights agenda.
  • Sexuality and your child: A resource for parents of children with a disability: This pamphlet provides information for parents to help their children with disabilities understand and deal with their sexuality.
  • The extended PLISSIT model for addressing the sexual wellbeing of individuals with an acquired disability or chronic illness: This paper discusses the limitations in the way that healthcare practitioners may use Annon’s PLISSIT model in meeting the sexual wellbeing needs of individuals with an acquired disability and presents the merits of the extended model, Ex-PLISSIT. Key features of this model include explicit Permission-giving as a core feature of each of the other stages, the requirement to review all interactions with patients, and the incorporation of reflection as a means of increasing self-awareness by challenging assumptions.
  • Sexual knowledge, behavior and sources of information among deaf and hard of hearing college students: A study to investigate sexual knowledge and sources of information among deaf college students. Results show deaf college students need better sexual health information. Further research needs in this area are suggested.

Curricula

  • Sexuality for Parents of Teens with Disabilities: 13:35 minute video for parents of teens with disabilities. This video demonstrates how all people can live their lives as healthy sexual beings. Designed for viewing by parents and caregivers, it includes interviews with people of varying ages and abilities.
  • Sexuality and Spinal Cord Injury for HealthCare Professionals: This curriculum for health care professionals is intended to provide an opportunity for participants to gain knowledge, comfort, and skills to understand and manage the sexual health care of persons with spinal cord injury (SCI). By the end of this three-day program, participants should be able to recognize sexual concerns, demonstrate the communication skills necessary to provide a supportive environment, conduct sexuality assessment interviews with people who have SCI, relay relevant and unbiased sexual information, and provide specific suggestions about sexual options for people with SCI.

Websites

  • Disability and Abuse Projec: Resources and information on how to prevent and reduce abuse of people with disabilities, data and research on risks of abuse, resources/books, Risk Reduction Workbook for Parents and Service Providers.

Books

  • The ethics of touch: Two videos and a training manual about establishing and maintaining appropriate boundaries in service to people with developmental disabilities.
  • ust say know: Understanding and reducing the risk of sexual victimization: This book explores the victimization of people with disabilities and helps reduce the risk of sexual assault. The ring of safety presents the skills to teach people with disabilities to enable them to protect themselves. The book also presents a new way of looking at the indicators of sexual abuse in the population of people who have developmental disabilities.
  • Disability, sexuality, and abuse: Annotated bibliography: A compilation of resources regarding disability and sexual abuse.
  • Abuse and neglect of exceptional children: This book reviews literature and offers practical strategies for addressing individuals with developmental disabilities who have been, or are suspected of having been sexually abused.

Articles

  • Assessment of sexual consent capacity: This article discusses assessment of sexual consent capacity, its ethical and legal mandates, and a rationale for the assessment of capacity to have a sexual relationship. It reports current assessment practices used by the authors as well as a summary of relevant literature.

Curricula

  • FACTS: Forensic Assessment of Consent to Sex: An interviewing instrument to assess consent to sexual relationship through an inventory of the nature and consequences of the sexual act of intercourse or other penetration for adults with cognitive impairments.
  • Circles: Intimacy and relationships: This classic video program, used in over 10,000 facilities across the U.S., helps students to recognize exploitative relationships as well as develop mutually respectful ones. Includes 12 videos and multi-media.
  • WE CAN stop abuse: A sexual abuse prevention curriculum for persons with developmental disabilities: An 8-session, interactive curriculum to teach sexual abuse prevention skills to adolescents and adults with developmental disabilities. Includes objectives, pictures, activities, assessments, and more.
  • Preventing sexual abuse: Activities and strategies for those working with children and adolescents: This sexual abuse-prevention curriculum is divided into two sections. The first is a three- or five-day presentation for grades K through six, which is also adaptable for the developmentally disabled. The second is a one-, three-, or five-day presentation for grades seven through 12. The curriculum also provides information about involving parents and making the program work. Also included are guidelines for instructors and an appendix.
  • Voices ignored: Sexual assault of people with developmental disabilities: Voices Ignored addresses two of the most common problems in these sexual assault cases: recognizing when the crime has happened and effectively communicating once you’re involved in the case. Includes a video and manual.
  • Child sexual abuse curriculum for the developmentally disabled: This curriculum is divided into five parts: “Understanding Child Sexual Abuse of the Developmentally Disabled,” “The Treatment of Sexually Abused Children,” “Sexual Abuse: The Emotional and Behavioral Sequelae,” “Factors That Mediate the Sequelae of Child Sexual Abuse,” and “The Rappaport Curriculum for the Prevention of Child Sexual Abuse in Children with Developmental Disabilities.” The last chapter includes 10 lessons on sexuality and sexual abuse prevention for children who are in the mild range of mental retardation. An appendix is included, which parents and caregivers can review with children.